Cytokinetics Announces Recipients of Third Annual Communications Fellowship Grants - Seite 2

Camp Taylor: Camp Taylor is a medically supervised summer camp for children living with congenital heart defects focused on creating a positive, educational and self-affirming experience to bring joy to children who often face emotional and social challenges. The grant will allow Camp Taylor to serve more children affected by heart disease in the summer camp program and expand volunteer advocacy efforts with healthcare professionals. Additionally, the grant will support the creation of a new in-classroom initiative to educate teachers and classmates of children with congenital heart defects about heart disease to create awareness, understanding and empathy for the student.

The ALS Association Oregon and SW Washington Chapter: The ALS Association Oregon and SW Washington Chapter is the central source for services and education for people with ALS, their families, caregivers and health care professionals in all of Oregon and the six counties of Southwest Washington. The chapter will use the grant to launch an awareness campaign that aims to increase ALS awareness and outreach to the underserved population of people living with ALS in remote and rural communities in Oregon. The campaign will build awareness and promote patient and caregiver education through virtual town halls, live virtual education series, and virtual caregiver bootcamps. The grant will also be used to provide more assistive technology services to people living with ALS to ensure access to virtual education and awareness activities.

The ALS Association Massachusetts Chapter: The ALS Association Massachusetts Chapter serves patients with ALS, providing no-cost services to ALS families including support groups, home visits, insurance counseling, referrals to community resources, education and support. The chapter also manages an Augmentative & Alternative Communication and Assistive Technology (AAC/AT) Program, which provides free communication device loans and access to technologies to individuals with ALS. With the grant, the chapter will increase its AAC/AT Loan Program inventory and expand the program by increasing outreach to individuals with ALS throughout New England in collaboration with nearby chapters of The ALS Association.