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     141  0 Kommentare Catalyst Pharmaceuticals Announces Support of Rare Disease Day 2021 - Seite 2

    "Rare disease day is a great opportunity to drive awareness around the rare diseases that 300 million people live with," said Mike Porath, founder and CEO of The Mighty. "It's also an opportunity to drive collaboration among the patients, caregivers, doctors, drug makers and more who are working to improve the lives of those living with rare diseases. We're proud to help bring these people and organizations together."

    Details of the Facebook Live event
    Location: https://bit.ly/CatalystFBLive2021
    Date: Friday, February 26th
    Time: 4:00 pm – 4:45 pm ET
    Moderator: Mike Porath, Founder and CEO of The Mighty
    Panelist:  Chip, a LEMS patient ambassador
      Dr. Ericka Greene, Neurologist, Houston Methodist    
    Subject: Late-onset diagnosis of rare disease, misdiagnosis, and living with a chronic illness from a patient and HCP perspective

    “With over 300 million members, we are proud to support the effort to build unity within the rare and ultra-rare disease community," said Patrick J. McEnany, Chairman and CEO of Catalyst. “This year we are honored to provide our employees, patients, advocates, and family members a platform to amplify their voice and showcase their dedication and passion in advocating for the rare and ultra-rare disease community. Through this initiative we will continue to educate and raise awareness on the prevalence and challenges of those living with a rare disease.”

    For information about Rare Disease Day activities, visit https://rarediseases.org/rare-disease-day/.

    About Catalyst Pharmaceuticals

    Catalyst Pharmaceuticals is a commercial-stage biopharmaceutical company focused on developing and commercializing innovative therapies for people with rare debilitating, chronic neuromuscular and neurological diseases, including Lambert-Eaton myasthenic syndrome (LEMS), anti-MuSK antibody positive myasthenia gravis (MuSK-MG) and other neurological and neuromuscular disorders. Catalyst's New Drug Application for Firdapse (amifampridine) 10 mg tablets for the treatment of adults with LEMS was approved in 2018 by the U.S. Food & Drug Administration ("FDA"), and Firdapse is now commercially available in the United States. Further, Canada’s national healthcare regulatory agency, Health Canada, recently approved the use of Firdapse (amifampridine) for the treatment of patients in Canada with LEMS.

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    Catalyst Pharmaceuticals Announces Support of Rare Disease Day 2021 - Seite 2 Catalyst Supporting Facebook Live Panel on Living with a Rare Disease Hosted by The MightyCatalyst Kicks off Rare Reason Campaign CORAL GABLES, Fla., Feb. 22, 2021 (GLOBE NEWSWIRE) - Catalyst Pharmaceuticals, Inc. (Catalyst) (Nasdaq: CPRX), a …