Adapting to change

sustaining care in a new world - Seite 2

WFH support for the bleeding disorders community is provided by many endeavours which are making a difference in the community today, including:

• WFH programs which are carried out in collaboration with national member organizations (NMOs) and a dedicated group of medical and lay volunteers, and are based on a comprehensive development model that aims to achieve sustainable comprehensive care and "Treatment for All".
• The WFH Humanitarian Aid Program which provides a range of integrated care development training programs to ensure the local infrastructure and medical expertise in developing countries are able to use donated products in the most optimal way possible.
• The new WFH Path to Access to Care and Treatment (PACT) Program aims to improve outreach and diagnosis and increase access to sustainable care for people with inherited bleeding disorders through training, education and evidence-based advocacy. The program will launch in 2021.
• WFH World Bleeding Disorders Registry (WBDR), which uses data collection to advance the understanding and care of people with hemophilia worldwide. An accessible patient registry strengthens our capacity to identify, diagnose, treat, and care for people living with hemophilia and other rare inherited bleeding disorders.
• The WFH Annual Global Survey which collects basic demographic information and data on access to care and treatment products in order to provide hemophilia organizations, hemophilia treatment centres and health officials with useful information to support efforts to improve or sustain the care of people with bleeding disorders.
• The WFH eLearning Platform which features hundreds of important educational resources for users with both medical and non-medical backgrounds—in multiple languages—including guides, fact sheets, videos, articles, games, and interactive modules that are downloadable for free, and are well-suited for any learning style or area of interest.

To learn more about World Hemophilia Day, please visit www.wfh.org/en/events/world-hemophilia-day.

The WFH would like to thank our 2021 World Hemophilia Day sponsors for their continued support:

Bayer