Health Stakeholders Urged to 'Get on the Map' as On-Line Collection Tool to Capture Global Patient Engagement Goes Live - Seite 2

"Our end goal is to develop an efficient, measurable and reliable meta-framework for PE that involves patients as partners. But this cannot be achieved without knowing, understanding and learning from the many initiatives that already exist - this is what the mapping project has been designed to achieve.  We urge everyone committed to more effective and meaningful PE to access the collection tool and enter their data to make sure their initiatives get on the map," said Brooke.

Notes for editors 

• The online collection tool developed by Patient Focused Medicines Development (PFMD) is now open for users and organisations to enter their data and can be accessed at: https://involvement-mapping.patientfocusedmedicine.org/register/
• The collection tool and mapping initiative are described in detail in the PFMD White Paper "Collaborative Patient Engagement: Mapping the Global Landscape - A first step in co-creating an action-orientated framework for patient engagement" published on April 26, 2016 and available in the DIA White Paper Library at: http://www.diaglobal.org/en/resources/publications/whitepapers/patient-focused-medicine  
• The PFMD group, established in 2015, is an open, independent multinational coalition based on expertise and commitment to develop and drive implementation of PE. It is a non-profit collaboration whose activities are funded by member organizations.
•  PFMD is a truly global partnership and a collaborative platform that synergizes efforts to integrate the voice of the patient across the lifecycle of medicines development. Its vision is to improve global health by co-designing the future of health care for patients with patients. PFMD aims to transform the way in which health ecosystem stakeholders understand, engage, and partner with patients globally in the design and development of research and medicines by focusing on unmet patient needs.
• PFMD has developed an organic and inclusive partnership strategy that encourages evaluation and feedback, review and ongoing refinement of their work towards a meta-framework for patient engagement. Visit http://www.PFMD.org for more information about PFMD.
• The DIA 2016 Annual Meeting takes place from June 26-30, 2016 in Philadelphia and is the largest global interdisciplinary gathering of life sciences professionals (http://www.diaglobal.org/flagship/dia-2016).