EuroBloodNet Aims for Better Care for Patients with Rare Blood Disorders

Vilnius, Lithuania (ots/PRNewswire) -

Patients suffering from rare blood disorders will benefit from
networks of excellence across the European Member States.

At the third conference on European Reference Networks (ERNs)
yesterday in Vilnius, Lithuania, EuroBloodNet was officially awarded
as one of the recently approved ERNs.

ERNs is an initiative of the European Commission and consist of
networks of healthcare providers and centers of excellence in Europe
aimed at improving quality, safety, and access to highly specialised
healthcare. Through these networks healthcare providers have access
to a much larger knowledge pool and patients have better changes to
receive the best treatment.

EuroBloodNet, the ERN on rare hematological diseases, results from
joint efforts of the European Hematology Asssociation (EHA), and the
European Network for Rare Congenital Anemias (ENERCA). It is
coordinated by Prof. Pierre Fenaux from the Hopital Saint Louis ,
Paris, together with Prof. Béatrice Gulbis from the University
Hospital Erasme , Brussels. The network brings together 66 highly
specialized hospital centres with expertise on malignant and
non-malignant rare hematological diseases.

Patient involvement is key in ERNs. For EuroBloodNet the
hematology patient community elected five representatives: Amanda Bok
(European Haemophilia Consortium), Angelo Loris Brunetta
(Associazione Ligure Thalassemici Onlus), Jan Geissler (Leukemia
Patient Advocates Foundation), Ananda Plate (Myeloma Patients Europe)
and Sophie Wintrich (MDS UK Patient Support Group) successfully
ensured that the patient voice is fully represented in the ERN Board
and sub-clinical committees - a great achievement and a milestone in
increasing the role of patients in clinical care as it evolves in
Europe.

After their first meeting in January 2017 in Paris, EuroBloodNet
will gather again at the congress of the European Hematology
Association, from June 22-25, in Madrid, Spain.

ots Originaltext: European Hematology Association (EHA)
Im Internet recherchierbar: http://www.presseportal.de

Contact:
For more information
please send a message to Robin Doeswijk
EHA European Affairs Coordinator ([e-mail])
[phone]